Dan Donoher was diagnosed on the 6th December with a rare genetic neuromuscular disease called Spinal Muscular Atrophy (SMA) Type 1 and Scoliosis.
Life expectancy of an SMA type 1 child is 18-24 months.
However, a drug only available in the USA can help. The cost of the treatment is $2.1 million.
Dan has just turned one and the widow for treatment is now just 12 months.
A fundraising campaign has been launched and donations can be made by visiting: